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This collection of chapters casts a critical eye on the concept of coproduction in our national mental health and learning disability services. Is it naive idealism? A one-way road to co-optioning the independent user/survivor movement? A major challenge to the hegemony of the psychiatric profession? The next progressive step in the shift away from medicalised care? Or is it simply unaffordable, unacceptable and unmanageable to policymakers, decision-takers and funding bodies? Contributors from across the mental health arena offer critical analysis and case examples of coproduction in principle and practice. Presented in three parts, the book describes the progression towards and the barriers that block the achievement of coproduction, the challenges it presents to the psychiatric and mental health professions, and finally, examples where progress has been made. The contributions demonstrate how users of services and their carers can be involved as equal partners in shaping the delivery of democratic, ethical, equitable mental health care in secure, acute and community settings.
Introduction - Julian Raffay, Mick McKeown and Tim Thornton
Section 1. Navigating coproduction: Exploring the context of coproduction in services - Julian Raffay and Pamela Fisher
1. Towards the ideal ward round: A coproduced service improvement project - Gemma Stacey, Anne Felton, involvement volunteers and members of the Ideal Ward Round Steering Group
2. Mental health recovery through coproduction: African and Caribbean men's experiences in the United Kingdom - Kris Southby, Frank Keating and Stephen Joseph
3. Collaboration in secure care: a history of the past, the present and the future - Mark Chandley and AB
4. From depression to delight and nearly everything in between: a non-academic perspective - Elaine Harrison
Section 2. Barriers and facilitators to coproduction - Catherine Mills and Mick McKeown
5. Relational spaces for mental health and wellbeing - Rhiannon Corcoran, Maureen Thomas, Julia Zielke
6. Coproduction and care planning - Catherine Mills
7. Coproduction and addiction - Lucy Webb and Amanda Clayson
8. Coproduction in forensic learning disability settings - Michaela Thomson, Mike Hargreaves and Shaun Peterson
9. Breaking down the barriers to coproduction - Kate Pieroudis
Section 3. Coproducing the future - Tim Thornton
10. A personal story and thoughts - Don Bryant
11. Challenging co-option: From coproduction by organisations to co-creation of value by users - Andrew Passey
12. The ethics of coproduction: stumbling across the light - Julian Raffay and Walid Elkharam
13. Coproducing democratic relationships - Mick McKeown, Albert Dzur and Pamela Fisher
14. Conclusions - David Pilgrim
‘This book is joyous as it takes you through a variety of coproduction journeys, focusing on many rich experiences. There is plenty to explain what helps and hinders coproduction, and it also has an eye to a future of possibilities. This book gives me hope.’
Tina Coldham, mental health user consultant and survivor researcher
‘Those of us working on the theory and practice of coproduction hanker after books that dig down into its implications in different fields, in a critical way. This book is supremely valuable in this regard. It is the first book-length treatment of coproduction in mental health – an area where it has distinct and powerful potential… The book provides rich, unique and critically informed commentaries on all these questions, and more besides. It will provide a welcome and illuminating resource for anyone with an interest in what coproduction is and what it can offer.’
Dr Gideon Calder, Associate Professor, School of Social Sciences, Swansea University
‘Coproduction is about bringing people together, forming meaningful relationships and addressing power imbalances. It is rarely easy and often challenging. This book brings together a diversity of authors to share their experiences and highlight the challenges and opportunities of coproduction in mental health services. In so doing, it provides an inspirational vision for a more inclusive future for mental health services.’
Martin Webber, Professor of Social Work, University of York
‘This book is fabulous, showcasing ways that coproduction works, with examples from all corners of mental health services, ranging from forensic to community, voluntary and social enterprise to mainstream NHS, research, learning disability and more. As these chapters demonstrate, where services are designed from the bottom up in non-hierarchical systems, the process becomes joyous, enriching and well worth the effort.’
Dr Melvin Bradley, CEO, Mental Health Independent Support Team, Bolton
Julian Raffay was working as Specialist Chaplain (Research, Education and Development) until his post at Mersey Care was cut in March 2020. Since then, he has completed his professional doctorate on the relationship between mental health services and faith communities with particular emphasis on the ethics of coproduction. He returned briefly to church ministry as Interim Team Rector in an economically disadvantaged parish in Liverpool. He is now Director of Chaplaincy Studies at St Padarn’s Institute, Cardiff.
Don Bryant was formerly a bank manager, set up a management training company with diverse clients across north-west England, joined Imagine, a Liverpool-based mental health charity, established an educational, training and employment centre for recovering drug users, and then became ill with severe depression in 2008. Since 2009 he has acted in numerous capacities as a service user and carer representative, winning the Chairman’s Award in 2015. He also served as a trustee of the national Mental Health Network.
Pamela Fisher is an independent researcher. Until May 2019, she was a Reader in Social & Health Citizenship at Leeds Beckett University, having previously held academic posts at the universities of Sheffield, Huddersfield, Liverpool and Leeds. Her work offers critical sociological perspectives on resilience, wellbeing and mental health, particularly from the perspectives of marginalised and socially under-valued groups.
Catherine Mills has worked as Service User and Carer Lead with Mersey Care NHS Foundation Trust since 2012, where she is responsible for the engagement and involvement of service users and carers across Merseyside. Originally she was involved with the trust as a service user. Her current role includes research, where she has been involved in several projects that have been coproduced with service users and carers.
Mick McKeown is Professor of Democratic Mental Health, School of Nursing, University of Central Lancashire and a trade union activist with UNISON, playing a role in union strategising on professional nursing. He has published widely in the mental health field, including co-editing the recent textbook, Essentials of Mental Health Nursing.
Tim Thornton is Professor of Philosophy and Mental Health in the School of Nursing, University of Central Lancashire. As well as contemporary philosophy of thought and language, his research mainly concerns conceptual issues in mental healthcare, and he has published papers on clinical judgement, idiographic and narrative understanding, the interpretation of psychopathology and recovery, as well as numerous books. He was a co-editor of the Oxford Handbook of Philosophy and Psychiatry and is a senior editor of the journal Philosophy, Psychiatry and Psychology.